There are times when it feels like I’m living life on a razor thin edge between sanity and complete shut-down. Catatonia – that’s what it feels like I’m heading for at times. I don’t know how to have any hopes or dreams anymore. My son has this awful neurodegenerative condition, with an immune deficiency andContinue reading “Accepting what is.”
Category Archives: crisis
In the hospital again.
Love is a painful process. Obvious, not new information, but as real as crawling across the overflow of needles from the sharps boxes on your bare hands and knees when you are staying with your sick child. I consider myself incredibly lucky, because my husband and I trust the surgeon who is in chargeContinue reading “In the hospital again.”