Dan’s daily life

  It has been fifteen years since my son Daniel’s diagnosis of Ataxia-Telangiectasia. Dan’s day typically starts with coughing.  He coughs on and off over night and his cough is relentless throughout the day.  Dan requires help to get out of bed each morning.  He needs assistance to sit on the edge of the bedContinue reading “Dan’s daily life”

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The difference a year makes

I’m running for TeamDan (www.atcp.org/TeamDan).  When Daniel was 3 years-old and first diagnosed with Ataxia-Telangiectasia it didn’t sound like we’d have very much time.  We were told that we would lose Dan in his teens, maybe in his twenties if we were lucky.  He’s still with us for now, and I’m running to help keepContinue reading “The difference a year makes”

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