I want to run so far, so fast, that Nothing can catch me, Not even my breath.
In thanks for all the support I received from my post yesterday, I wanted to share this with you. Dan’s life has its challenges, but he brings me and everyone around him so much joy. I love his artwork and I hope you do too!
It has been fifteen years since my son Daniel’s diagnosis of Ataxia-Telangiectasia. Dan’s day typically starts with coughing. He coughs on and off over night and his cough is relentless throughout the day. Dan requires help to get out of bed each morning. He needs assistance to sit on the edge of the bedContinue reading “Dan’s daily life”
Anxious by nature, my thoughts tend to run rampant through an overstimulated nervous system. My nights are full of images, worries, replays of the days events. Sleep is peppered with hours of laying awake, ruminating over the past and future. Last night I chased after memories, nervously pursuing them through the dark. The more franticContinue reading “Memory”
Source: The difference a year makes
I’m running for TeamDan (www.atcp.org/TeamDan). When Daniel was 3 years-old and first diagnosed with Ataxia-Telangiectasia it didn’t sound like we’d have very much time. We were told that we would lose Dan in his teens, maybe in his twenties if we were lucky. He’s still with us for now, and I’m running to help keepContinue reading “The difference a year makes”
A dark, slender branch elegantly dressed in snow reaches for the sun.
Blades of grass poke up through dark ovals in quartets deer tracks in the snow.
White, fluffy flakes dance pirhouette in the soft wind and fall to the earth.
Morning comes again light touching shattered windows debris littered streets empty tear gas canisters remnants of anger and pain.